Who We Are
Hello and welcome to the Retinitis Pigmentosa Hub! We’re a dedicated team of hobbyists deeply interested in the various developments regarding Retinitis Pigmentosa (RP). We noticed that many healthcare professionals hesitate to recommend supplements and various nutrients until their benefits have been fully scientifically validated, even though some options may offer considerable potential, with substantial evidence, and even chronic use may bring small risks.
Furthermore, the pipeline for developing therapies is advancing rapidly. For those not intricately involved in the field, gaining a comprehensive overview can however prove challenging. This is where we hope to make a contribution.
The Awareness Gap
We found that many people, including those newly diagnosed and even some healthcare providers, are not fully aware of potential actions to slow down the course of RP as well as the ongoing developments in pharmaceutical interventions. This gap in awareness can limit choices and potentially impact the quality of life for those affected by this condition. This website aims to bridge that gap by centralizing all available information in one easily accessible platform.
Our Mission
Our mission is clear-cut: to compile, organize, and disseminate potential actions for RP in a way that elevates awareness and accessibility. In doing so, we hope to empower individuals affected by RP to stay informed.
Our Perspective
We are fueled by a genuine concern for the well-being of the RP community. Our aim is not to replace professional medical advice but to provide a springboard for informed discussions between patients and their healthcare providers. Where possible we refer to the sources from quality journals.
We welcome you to explore, learn, and contribute. If you have questions, insights, or would like to share your own experiences with RP therapies, we encourage you to reach out through the “Contact Us” section.